Rosmarie Pfau, a founding member of the SAKK Patient Advisory Board, recently spoke about the significant goals and achievements of the council since its inception in 2015. The Patient Advisory Board, consisting of ten members, is dedicated to improving communication between researchers and patients.
A central concern of the SAKK Patient Advisory Board is to enhance the education of patients participating in studies. This aims to ensure that patients are fully informed and better understand their participation in clinical trials. Additionally, the council works to better consider the needs of participants in the development of clinical trials and questions.
In the long term, the Patient Advisory Board aims to provide innovative therapies that are optimally tailored to the needs of patients. Another goal is to encourage affected individuals to participate in clinical cancer trials to develop better treatment options.
Rosmarie Pfau emphasized the importance of early involvement of patients in the research process to ensure that their views and experiences are taken into account. This promotes the quality of life of those affected and ensures that the therapies developed are not only effective but also tolerable.